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ISQOLS BIBLIOGRAPHIC RESOURCES

Health-related Quality of Life

  • Acton, Q. A. (Ed.). (2012). Issues in Quality in Healthcare and Quality of Life: 2011 Edition. United States: ScholarlyEditions.
  • Al-Sari, U. A., Tobias, J., & Clark, E. (2016). Health-related quality of life in older people with osteoporotic vertebral fractures: a systematic review and meta-analysis. Osteoporosis international, 27(10), 2891-2900.
  • Andresen, E. M., & Meyers, A. R. (2000). Health-related quality of life outcomes measures. Archives of physical medicine and rehabilitation, 81, S30-S45.
  • Asadi-Lari, M., Tamburini, M., & Gray, D. (2004). Patients' needs, satisfaction, and health related quality of life: towards a comprehensive model. Health and quality of life outcomes, 2, 1-15.
  • Bakas, T., McLennon, S. M., Carpenter, J. S., Buelow, J. M., Otte, J. L., Hanna, K. M., ... & Welch, J. L. (2012). Systematic review of health-related quality of life models. Health and quality of life outcomes, 10, 1-12.
  • Balogun, S. A., Balogun, R., Philbrick, J., & Abdel‐Rahman, E. (2017). Quality of life, perceptions, and health satisfaction of older adults with end‐stage renal disease: A systematic review. Journal of the american geriatrics society, 65(4), 777-785.
  • Benito-León, J., Manuel Morales, J., Rivera-Navarro, J., & Mitchell, A. J. (2003). A review about the impact of multiple sclerosis on health-related quality of life. Disability and rehabilitation, 25(23), 1291-1303.
  • Bize, R., Johnson, J. A., & Plotnikoff, R. C. (2007). Physical activity level and health-related quality of life in the general adult population: a systematic review. Preventive medicine, 45(6), 401-415.
  • Boberska, M., Szczuka, Z., Kruk, M., Knoll, N., Keller, J., Hohl, D. H., & Luszczynska, A. (2018). Sedentary behaviours and health-related quality of life. A systematic review and meta-analysis. Health psychology review, 12(2), 195-210.
  • Both, H., Essink-Bot, M. L., Busschbach, J., & Nijsten, T. (2007). Critical review of generic and dermatology-specific health-related quality of life instruments. Journal of Investigative Dermatology, 127(12), 2726-2739.
  • Bowling, A. (1997). Measuring Health: A Review of Quality of Life Measurement Scales. United Kingdom: Open University Press.
  • Bowling, A. (2001). Measuring Disease: A Review of Disease Specific Quality of Life Measurement Scales. United Kingdom: McGraw-Hill Education.
  • Bowling, A. (2017). Measuring Health: a Review of Subjective Health, Well-Being and Quality of Life Measurement Scales. United Kingdom: McGraw-Hill Education.
  • Chachamovich, J. R., Chachamovich, E., Ezer, H., Fleck, M. P., Knauth, D., & Passos, E. P. (2010). Investigating quality of life and health-related quality of life in infertility: a systematic review. Journal of Psychosomatic Obstetrics & Gynecology, 31(2), 101-110.
  • Choi, W. (2017). Health-Related Quality of Life Measures for Women with Menopausal Symptoms: A Systematic Review. United States: BiblioBazaar.
  • Clarke, S. A., & Eiser, C. (2004). The measurement of health-related quality of life (QOL) in paediatric clinical trials: a systematic review. Health and quality of life outcomes, 2, 1-5.
  • Coons, S. J., Rao, S., Keininger, D. L., & Hays, R. D. (2000). A comparative review of generic quality-of-life instruments. Pharmacoeconomics, 17, 13-35.
  • Crocker, T. F., Smith, J. K., & Skevington, S. M. (2015). Family and professionals underestimate quality of life across diverse cultures and health conditions: systematic review. Journal of Clinical Epidemiology, 68(5), 584-595.
  • Cummins, R. A., & Lau, A. L. (2006). Using health and subjective wellbeing for quality of life measurement: A review. Social policy review 18, 165-192.
  • Doll, H., & Miravitlles, M. (2005). Health-related QOL in acute exacerbations of chronic bronchitis and chronic obstructive pulmonary disease: a review of the literature. Pharmacoeconomics, 23, 345-363.
  • Dowdy, D. W., Eid, M. P., Sedrakyan, A., Mendez-Tellez, P. A., Pronovost, P. J., Herridge, M. S., & Needham, D. M. (2005). Quality of life in adult survivors of critical illness: a systematic review of the literature. Intensive care medicine, 31, 611-620.
  • Drotar, D. (Ed.). (2014). Measuring Health-Related Quality of Life in Children and Adolescents: Implications for Research and Practice. United Kingdom: Taylor & Francis.
  • El‐Serag, H. B., Olden, K., & Bjorkman, D. (2002). Health‐related quality of life among persons with irritable bowel syndrome: a systematic review. Alimentary pharmacology & therapeutics, 16(6), 1171-1185.
  • Engel, S. G., Adair, C. E., Hayas, C. L., & Abraham, S. (2009). Health‐related quality of life and eating disorders: A review and update. International Journal of Eating Disorders, 42(2), 179-187.
  • Farajzadeh, M., Gheshlagh, R. G., & Sayehmiri, K. (2017). Health related quality of life in Iranian elderly citizens: a systematic review and meta-analysis. International journal of community based nursing and midwifery, 5(2), 100.
  • Fayed, N., De Camargo, O. K., Kerr, E., Rosenbaum, P., Dubey, A., Bostan, C., ... & Cieza, A. (2012). Generic patient‐reported outcomes in child health research: a review of conceptual content using World Health Organization definitions. Developmental Medicine & Child Neurology, 54(12), 1085-1095.
  • Fayers, P. M., Machin, D. (2013). Quality of Life: The Assessment, Analysis and Interpretation of Patient-reported Outcomes. Germany: Wiley.
  • Ferriss, A. L. (2010). Approaches to Improving the Quality of Life: How to Enhance the Quality of Life. Germany: Springer Netherlands.
  • Filbay, S. R., Ackerman, I. N., Russell, T. G., Macri, E. M., & Crossley, K. M. (2014). Health-related quality of life after anterior cruciate ligament reconstruction: a systematic review. The American journal of sports medicine, 42(5), 1247-1255.
  • Gakhar, H., Kamali, A., & Holodniy, M. (2013). Health-related quality of life assessment after antiretroviral therapy: a review of the literature. Drugs, 73, 651-672.
  • Gerritsen, A. E., Allen, P. F., Witter, D. J., Bronkhorst, E. M., & Creugers, N. H. (2010). Tooth loss and oral health-related quality of life: a systematic review and meta-analysis. Health and quality of life outcomes, 8, 1-11.
  • Golomb, B. A., Vickrey, B. G., & Hays, R. D. (2001). A review of health-related quality-of-life measures in stroke. Pharmacoeconomics, 19, 155-185.
  • Green, C., Brazier, J., & Deverill, M. (2000). Valuing health-related quality of life: a review of health state valuation techniques. Pharmacoeconomics, 17, 151-165.
  • Guo, N., Marra, F., & Marra, C. A. (2009). Measuring health-related quality of life in tuberculosis: a systematic review. Health and quality of life outcomes, 7, 1-10.
  • Haraldstad, K., Wahl, A., Andenæs, R., Andersen, J. R., Andersen, M. H., Beisland, E., ... & LIVSFORSK network. (2019). A systematic review of quality of life research in medicine and health sciences. Quality of life Research, 28, 2641-2650.
  • Harding, L. (2001). Children's quality of life assessments: a review of generic and health related quality of life measures completed by children and adolescents. Clinical Psychology & Psychotherapy: An International Journal of Theory & Practice, 8(2), 79-96.
  • Haywood, K. L., Garratt, A. M., & Fitzpatrick, R. (2006). Quality of life in older people: a structured review of self-assessed health instruments. Expert review of pharmacoeconomics & outcomes research, 6(2), 181-194.
  • Hickey, A., Barker, M., McGee, H., & O’Boyle, C. (2005). Measuring health-related quality of life in older patient populations: a review of current approaches. Pharmacoeconomics, 23, 971-993.
  • Hilari, K., Needle, J. J., & Harrison, K. L. (2012). What are the important factors in health-related quality of life for people with aphasia? A systematic review. Archives of physical medicine and rehabilitation, 93(1), S86-S95.
  • Howard-Anderson, J., Ganz, P. A., Bower, J. E., & Stanton, A. L. (2012). Quality of life, fertility concerns, and behavioral health outcomes in younger breast cancer survivors: a systematic review. Journal of the National Cancer Institute, 104(5), 386-405.
  • Institute of Medicine (U.S.). (1976). Assessing Quality in Health Care: An Evaluation : Report of a Study. United States: National Academy of Sciences.
  • Johansson, P., Agnebrink, M., Dahlström, U., & Broström, A. (2004). Measurement of health-related quality of life in chronic heart failure, from a nursing perspective—a review of the literature. European Journal of Cardiovascular Nursing, 3(1), 7-20.
  • Johansson, P., Dahlström, U., & Broström, A. (2006). Factors and interventions influencing health-related quality of life in patients with heart failure: a review of the literature. European Journal of Cardiovascular Nursing, 5(1), 5-15.
  • Kandelman, D., Petersen, P. E., & Ueda, H. (2008). Oral health, general health, and quality of life in older people. Special care in dentistry, 28(6), 224-236.
  • Kaplan, R. M. (2003). The significance of quality of life in health care. Quality of life research, 12, 3-16.
  • Kini, S. P., & DeLong, L. K. (2012). Overview of health status quality-of-life measures. Dermatologic clinics, 30(2), 209-221.
  • Kolotkin, R. L., & Andersen, J. R. (2017). A systematic review of reviews: exploring the relationship between obesity, weight loss and health‐related quality of life. Clinical obesity, 7(5), 273-289.
  • Kyle, S. D., Morgan, K., & Espie, C. A. (2010). Insomnia and health-related quality of life. Sleep medicine reviews, 14(1), 69-82.
  • Land, K. C., Michalos, A. C. (2011). Handbook of Social Indicators and Quality of Life Research. Netherlands: Springer Netherlands.
  • Lee, S. Y., Choi, S. C., & Nah, Y. H. (2001). Review on health-related quality of life (HRQL). Kor J Neurogastroenterol Motil, 7(1), 6-17.
  • Lin, X. J., Lin, I. M., & Fan, S. Y. (2013). Methodological issues in measuring health-related quality of life. Tzu Chi Medical Journal, 25(1), 8-12.
  • Lithgow Campos, N. (2019). A Review of Health-Related Quality of Life Metrics and Questionnaries for Glaucoma. Puerto Rico: Inter American University of Puerto Rico, School of Optometry.
  • Liu, L. Y., King, B. A., & Craiglow, B. G. (2016). Health-related quality of life (HRQoL) among patients with alopecia areata (AA): a systematic review. Journal of the American Academy of Dermatology, 75(4), 806-812.
  • Llewellyn, C. D., McGurk, M., & Weinman, J. (2005). Are psycho-social and behavioural factors related to health related-quality of life in patients with head and neck cancer? A systematic review. Oral oncology, 41(5), 440-454.
  • Lohr, K. N. (2002). Assessing health status and quality-of-life instruments: attributes and review criteria. Quality of life Research, 11, 193-205.
  • Margolis, M. K., Coyne, K., Kennedy-Martin, T., Baker, T., Schein, O., & Revicki, D. A. (2002). Vision-specific instruments for the assessment of health-related quality of life and visual functioning: a literature review. Pharmacoeconomics, 20, 791-812.
  • Marinus, J., Ramaker, C., van Hilten, J. J., & Stiggelbout, A. (2002). Health related quality of life in Parkinson's disease: a systematic review of disease specific instruments. Journal of neurology, neurosurgery & psychiatry, 72(2), 241-248.
  • Mayo, N. E. (Ed.). (2015). ISOQOL Dictionary of Quality of Life and Health Outcomes Measurement. United States: International Society for Quality of Life Research (ISOQOL).
  • Mokhatri-Hesari, P., & Montazeri, A. (2020). Health-related quality of life in breast cancer patients: review of reviews from 2008 to 2018. Health and quality of life outcomes, 18, 1-25.
  • Morgan, P. A., Franks, P. J., & Moffatt, C. J. (2005). Health‐related quality of life with lymphoedema: a review of the literature. International wound journal, 2(1), 47-62.
  • Naito, M., Yuasa, H., Nomura, Y., Nakayama, T., Hamajima, N., & Hanada, N. (2006). Oral health status and health-related quality of life: a systematic review. Journal of oral science, 48(1), 1-7.
  • Oluchi, S. E., Manaf, R. A., Ismail, S., Kadir Shahar, H., Mahmud, A., & Udeani, T. K. (2021). Health related quality of life measurements for diabetes: a systematic review. International journal of environmental research and public health, 18(17), 9245.
  • Pequeno, N. P. F., Cabral, N. L. D. A., Marchioni, D. M., Lima, S. C. V. C., & Lyra, C. D. O. (2020). Quality of life assessment instruments for adults: a systematic review of population-based studies. Health and quality of life outcomes, 18, 1-13.
  • Phyo, A. Z. Z., Freak-Poli, R., Craig, H., Gasevic, D., Stocks, N. P., Gonzalez-Chica, D. A., & Ryan, J. (2020). Quality of life and mortality in the general population: a systematic review and meta-analysis. BMC public health, 20, 1-20.
  • Prutkin, J. M. (2002). A History of Quality of Life Measurements. United States: Yale University.
  • Revicki, D. A., Kleinman, L., & Cella, D. (2014). A history of health-related quality of life outcomes in psychiatry. Dialogues in clinical neuroscience, 16(2), 127-135.
  • Sitlinger, A., & Zafar, S. Y. (2018). Health-related quality of life: the impact on morbidity and mortality. Surgical Oncology Clinics, 27(4), 675-684.
  • Smith, S. C., Lamping, D. L., & Maclaine, G. D. H. (2012). Measuring health-related quality of life in diabetic peripheral neuropathy: a systematic review. Diabetes research and clinical practice, 96(3), 261-270.
  • Soh, S. E., Morris, M. E., & McGinley, J. L. (2011). Determinants of health-related quality of life in Parkinson’s disease: a systematic review. Parkinsonism & related disorders, 17(1), 1-9.
  • Solans, M., Pane, S., Estrada, M. D., Serra‐Sutton, V., Berra, S., Herdman, M., ... & Rajmil, L. (2008). Health‐related quality of life measurement in children and adolescents: a systematic review of generic and disease‐specific instruments. Value in health, 11(4), 742-764.
  • Spanemberg, J. C., Cardoso, J. A., Slob, E. M. G. B., & López-López, J. (2019). Quality of life related to oral health and its impact in adults. Journal of stomatology, oral and maxillofacial surgery, 120(3), 234-239.
  • Spieth, L. E., & Harris, C. V. (1996). Assessment of health-related quality of life in children and adolescents: an integrative review. Journal of pediatric psychology, 21(2), 175-193.
  • Stanescu, S., Kirby, S. E., Thomas, M., Yardley, L., & Ainsworth, B. (2019). A systematic review of psychological, physical health factors, and quality of life in adult asthma. NPJ primary care respiratory medicine, 29(1), 37.
  • Swigris, J. J., Kuschner, W. G., Jacobs, S. S., Wilson, S. R., & Gould, M. (2005). Health-related quality of life in patients with idiopathic pulmonary fibrosis: a systematic review. Thorax, 60(7), 588-594.
  • Tengs, T. O., Yu, M., & Luistro, E. (2001). Health-related quality of life after stroke a comprehensive review. Stroke, 32(4), 964-972.
  • Tonon, G. (Ed.). (2015). Qualitative Studies in Quality of Life: Methodology and Practice. Germany: Springer International Publishing.
  • Unrath, M. (2010). Quality of Life of People Living with HIV: a Review of the Literature. Germany: GRIN Verlag.
  • Van der Woude, D. A., Pijnenborg, J. M., & de Vries, J. (2015). Health status and quality of life in postpartum women: a systematic review of associated factors. European journal of obstetrics & gynecology and reproductive biology, 185, 45-52.
  • Varni, J. W., Limbers, C., & Burwinkle, T. M. (2007). Literature review: health-related quality of life measurement in pediatric oncology: hearing the voices of the children. Journal of pediatric psychology, 32(9), 1151-1163.
  • Waddell, G., Burton, A. K. (2006). Is Work Good for Your Health and Well-being?. United Kingdom: Stationery Office.
  • Zautra, A., & Goodhart, D. (1979). Quality of life indicators: A review of the literature. Community Mental Health Reveiw, 4(1), 1-14.
  • Zheng, M., Jin, H., Shi, N., Duan, C., Wang, D., Yu, X., & Li, X. (2018). The relationship between health literacy and quality of life: a systematic review and meta-analysis. Health and quality of life outcomes, 16, 1-10.


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