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ISQOLS BIBLIOGRAPHIC RESOURCES

QOL and Disability-related issues

  • Al Syifa, W., & Hadi, E. N. (2023). Determinants of quality of life on persons with physical disability: literature review. Journal of Social Research, 2(6), 1786-1795.
  • Barbotte, E., Guillemin, F., & Chau, N. (2001). Prevalence of impairments, disabilities, handicaps and quality of life in the general population: a review of recent literature. Bulletin of the World Health Organization, 79(11), 1047-1055.
  • Benito-León, J., Manuel Morales, J., Rivera-Navarro, J., & Mitchell, A. J. (2003). A review about the impact of multiple sclerosis on health-related quality of life. Disability and rehabilitation, 25(23), 1291-1303.
  • Bertelli, M., Salvador‐Carulla, L., Lassi, S., Zappella, M., Ceccotto, R., Palterer, D., ... & Rossi Prodi, P. (2013). Quality of life and living arrangements for people with intellectual disability. Advances in Mental Health and Intellectual Disabilities, 7(4), 220-231.
  • Brown, R. I. (Ed.). (1997). Quality of Life for People with Disabilities: Models, Research and Practice. United Kingdom: Stanley Thornes.
  • Brown, I., Brown, R. (2003). Quality of Life and Disability: An Approach for Community Practitioners. United Kingdom: Jessica Kingsley Publishers.
  • Carmo, J. F. D., Morelato, R. L., Pinto, H. P., & Oliveira, E. R. A. D. (2015). Disability after stroke: a systematic review. Fisioterapia em Movimento, 28, 407-418.
  • Chowdhury, M., & Benson, B. A. (2011). Deinstitutionalization and quality of life of individuals with intellectual disability: A review of the international literature. Journal of Policy and Practice in Intellectual disabilities, 8(4), 256-265.
  • Crocker, T. F., Smith, J. K., & Skevington, S. M. (2015). Family and professionals underestimate quality of life across diverse cultures and health conditions: systematic review. Journal of Clinical Epidemiology, 68(5), 584-595.
  • Cummins, R. A. (1997). Self‐rated quality of life scales for people with an intellectual disability: a review. Journal of Applied Research in Intellectual Disabilities, 10(3), 199-216.
  • D'Amico, D., Raggi, A., Grazzi, L., & Lambru, G. (2020). Disability, quality of life, and socioeconomic burden of cluster headache: a critical review of current evidence and future perspectives. Headache: The Journal of Head and Face Pain, 60(4), 809-818.
  • Dean, E. E., Shogren, K. A., Hagiwara, M., & Wehmeyer, M. L. (2018). How does employment influence health outcomes? A systematic review of the intellectual disability literature. Journal of Vocational Rehabilitation, 49(1), 1-13.
  • Fabian, E. S. (1990). Quality of life: A review of theory and practice implications for individuals with long-term mental illness. Rehabilitation Psychology, 35(3), 161.
  • Francisco Mora, C., Ibáñez, A., & Balcells-Balcells, A. (2020). State of the art of family quality of life in early care and disability: A systematic review. International Journal of Environmental Research and Public Health, 17(19), 7220.
  • Furlan, A. D., Irvin, E., Munhall, C., Giraldo-Prieto, M., Fullerton, L., Mcmaster, R., ... & Bayley, M. (2018). Rehabilitation service models for people with physical and/or mental disability living in low-and middle-income countries: A systematic review. Journal of Rehabilitation Medicine (Stiftelsen Rehabiliteringsinformation), 50(6).
  • Gil-González, I., Martín-Rodríguez, A., Conrad, R., & Pérez-San-Gregorio, M. Á. (2020). Quality of life in adults with multiple sclerosis: a systematic review. BMJ open, 10(11), e041249.
  • Goode, D. (1994). Quality of Life for Persons with Disabilities: International Perspectives and Issues. United Kingdom: Brookline Books.
  • Hensel, E. (2001). Is satisfaction a valid concept in the assessment of quality of life of people with intellectual disabilities? A review of the literature. Journal of Applied Research in Intellectual Disabilities, 14(4), 311-326.
  • Hill, M. R., Noonan, V. K., Sakakibara, B. M., & Miller, W. C. (2010). Quality of life instruments and definitions in individuals with spinal cord injury: a systematic review. Spinal cord, 48(6), 438-450.
  • Hu, X., Summers, J. A., Turnbull, A., & Zuna, N. (2011). The quantitative measurement of family quality of life: A review of available instruments. Journal of Intellectual Disability Research, 55(12), 1098-1114.
  • Isa, S. N. I., Ishak, I., Ab Rahman, A., Saat, N. Z. M., Din, N. C., Lubis, S. H., & Ismail, M. F. M. (2016). Health and quality of life among the caregivers of children with disabilities: A review of literature. Asian journal of psychiatry, 23, 71-77.
  • Jonsson, U., Alaie, I., Löfgren Wilteus, A., Zander, E., Marschik, P. B., Coghill, D., & Bölte, S. (2017). Annual Research Review: Quality of life and childhood mental and behavioural disorders–a critical review of the research. Journal of child psychology and psychiatry, 58(4), 439-469.
  • Kober, R. (Ed.). (2010). Enhancing the Quality of Life of People with Intellectual Disabilities: From Theory to Practice. Netherlands: Springer Netherlands.
  • Lancaster, K., Bhopti, A., Kern, M. L., Taylor, R., Janson, A., & Harding, K. (2023). Effectiveness of peer support programmes for improving well‐being and quality of life in parents/carers of children with disability or chronic illness: A systematic review. Child: Care, Health and Development, 49(3), 485-496.
  • Lawford, B. J., Walters, J., & Ferrar, K. (2016). Does walking improve disability status, function, or quality of life in adults with chronic low back pain? A systematic review. Clinical Rehabilitation, 30(6), 523-536.
  • Li, C., Tsoi, E. W., Zhang, A. L., Chen, S., & Wang, C. J. (2013). Psychometric properties of self-reported quality of life measures for people with intellectual disabilities: A systematic review. Journal of Developmental and Physical Disabilities, 25, 253-270.
  • Luitwieler, N., Luijkx, J., Salavati, M., Van der Schans, C. P., Van der Putten, A. J., & Waninge, A. (2021). Variables related to the quality of life of families that have a child with severe to profound intellectual disabilities: A systematic review. Heliyon, 7(7).
  • Lyons, G. (2011). Quality of life for persons with intellectual disabilities: A review of the literature. Enhancing the quality of life of people with intellectual disabilities: From theory to practice, 73-126.
  • Makris, T., Dorstyn, D., & Crettenden, A. (2021). Quality of life in children and adolescents with cerebral palsy: a systematic review with meta-analysis. Disability and rehabilitation, 43(3), 299-308.
  • Manderson, L., & Warren, N. (Eds.). (2013). Reframing Disability and Quality of Life: A Global Perspective. Netherlands: Springer Netherlands.
  • McCarron, M., Lombard-Vance, R., Murphy, E., May, P., Webb, N., Sheaf, G., ... & O’Donovan, M. A. (2019). Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review. BMJ open, 9(4), e025735.
  • Michalos, A. C. (2014). Encyclopedia of Quality of Life and Well-Being Research. Germany: Springer Netherlands.
  • Motl, R. W., & McAuley, E. (2010). Physical activity, disability, and quality of life in older adults. Physical Medicine and Rehabilitation Clinics, 21(2), 299-308.
  • Nieuwenhuijse, A. M., Willems, D. L., van Goudoever, J. B., Echteld, M. A., & Olsman, E. (2019). Quality of life of persons with profound intellectual and multiple disabilities: A narrative literature review of concepts, assessment methods and assessors. Journal of Intellectual & Developmental Disability, 44(3), 261-271.
  • Nunnerley, J., Dunn, J., McPherson, K., Hooper, G., & Woodfield, T. (2015). Participation and quality of life outcomes among individuals with earthquake-related physical disability: A systematic review. Journal of rehabilitation medicine, 47(5), 385-393.
  • Park, K., Esfahani, H. N., Novack, V. L., Sheen, J., Hadayeghi, H., Song, Z., & Christensen, K. (2023). Impacts of disability on daily travel behaviour: A systematic review. Transport reviews, 43(2), 178-203.
  • Pasini, S. (2011). Formal Supports Improve QOL for Parents of Children with Disabilities: Systematic Review; And, Mothers Caring for a Child with a Disability Require Dynamic, Tailored Support Services to Return to Paid Work. Australia: Edith Cowan University.
  • Ramadass, S., Rai, S. K., Gupta, S. K., Kant, S., Wadhwa, S., Sood, M., & Sreenivas, V. (2018). Prevalence of disability and its association with sociodemographic factors and quality of life in India: A systematic review. Journal of family medicine and primary care, 7(6), 1177-1184.
  • Schalock, R. L. (Ed.). (1990). Quality of Life: Perspectives and Issues. United States: American Association on Mental Retardation.
  • Schepens, H. R., Van Puyenbroeck, J., & Maes, B. (2019). How to improve the quality of life of elderly people with intellectual disability: A systematic literature review of support strategies. Journal of applied research in intellectual disabilities, 32(3), 483-521.
  • Schinwelski, M., & Sławek, J. (2010). Prevalence of spasticity following stroke and its impact on quality of life with emphasis on disability in activities of daily living. Systematic review. Neurologia i neurochirurgia polska, 44(4), 404-411.
  • Sinha, R., & Van Den Heuvel, W. J. (2011). A systematic literature review of quality of life in lower limb amputees. Disability and rehabilitation, 33(11), 883-899.
  • Tough, H., Siegrist, J., & Fekete, C. (2017). Social relationships, mental health and wellbeing in physical disability: a systematic review. BMC public health, 17, 1-18.
  • Townsend‐White, C., Pham, A. N. T., & Vassos, M. V. (2012). A systematic review of quality of life measures for people with intellectual disabilities and challenging behaviours. Journal of intellectual disability research, 56(3), 270-284.
  • Tseng, Y. C., Liu, S. H. Y., Lou, M. F., & Huang, G. S. (2018). Quality of life in older adults with sensory impairments: a systematic review. Quality of Life Research, 27, 1957-1971.
  • Wehmeyer, M. L. (Ed.). (2013). The Oxford Handbook of Positive Psychology and Disability. United Kingdom: OUP USA.
  • Weisscher, N., de Haan, R. J., & Vermeulen, M. (2007). The impact of disease-related impairments on disability and health-related quality of life: a systematic review. BMC Medical Research Methodology, 7, 1-10.


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Quality-of-Life Studies
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